"Good work,” my neurologist said, adding, “easy for me to say.” We were discussing my relapsing-remitting cervical myelopathy. “It's pretty much a full-time job," was my response which did not surprise him but did me. In over 40+ years of chronic auto immune disease, I refused to see it as my full-time anything. Just the... Continue Reading →
Doing What’s Required
Today’s #LongerView, “All Right Will Never Be the Same,” is a drive through Georgia, one that I take frequently, but not usually in the way I did in this post. It does involve the medical profession and the unexpected. I hope you enjoy the post. As always, I provide the swinging bench. Aim for Even... Continue Reading →
Up to My Neck in Alligators
Ah, up to my neck in alligators. The morning's first meditative thought, familiar and friendly. Tricky though--thoughts--learning to look and not touch or risk getting swept up in ego’s infinite loop. Awareness can be exhausting, and when I feel the alligators, I know I must sit with my energy. I’ve separated my yin from yang. Being... Continue Reading →
The Wordless Revelation
I am in search of sentences. Have been for days, weeks actually. I gather words but they are more a jumble than not. As witless as my words are, my hands and arms feel as if they belong to someone else. I’m in another major flare-up, a conflation of autoimmune and spinal cord disease. With... Continue Reading →
Sometimes, There Is No Translation
Some time ago, I wrote that the #DailyDose—of energy--does not necessarily mean a daily post. It is the vibration of chronic illness that determines whether writing happens or not. I aim to meet the daily rhythm of the energy; that is the heart of Aim for Even. For nearly two weeks, there has been no... Continue Reading →
Forever But Not Forever
Monica de la Torre says, “The sky’s changeups are reminders that this will not drag on forever.” I never thought of the sky as an ongoing image of impermanence but, of course, it is. All I need to do is look up. It’s rather like binge watching The Man in the High Castle or The... Continue Reading →
A Slow Fusion Is Better Than None
No matter the purpose of my appointment with the neurosurgeon, the conversation always comes down to autoimmune disease. Today’s visit was no different. This is the same neurosurgeon’s office that--a few weeks ago--rescheduled my appointment without telling me. Beyond that, there was an additional conversation about another scheduling error. However, we all showed up today... Continue Reading →
Its Own Kind of Joy
Often, I write of looking through the life lens of chronic illness. It is the experience I have, the reality I know. Sometimes, it breaks me open, and that is not a bad thing. Letting go of what is already slipping away is how we actually enjoy our life Lewis Richmond “Enjoying life” may not... Continue Reading →
Kinds of Love
It is a crisp, North Florida morning, a sunshine bright 33°, although the day may warm to the high 60s. What warms the heart will eventually warm the body is my energy mantra. I dress in layers for this is not a day that favors autoimmune disease, anemia, or arthritis. It is a day for... Continue Reading →
Perfect Storm: My Energy for the Day
Physically, this is a perfect storm day for me. My spinal cord and autoimmune disease are merging into my version of a category one hurricane. I predict it will not become a category five. After 40 years, my forecasts are fairly reliable. How I engage this powerful energy determines the life of the storm. There... Continue Reading →